Just a
quick note to give share with you that this experience continues to be amazing
and beautiful. There is so much to share and I am doing all I can to keep track
of it in my journals. They will be compiled and published in due time. For now I
just want to let you know how wonderful it is to work with mother. Her latest challenge
is to get used to a catheter. It sure has been uncomfortable for the
first 24 hours but now she is starting to get used to it and it will help her
sleep and spend more time on the other side preparing for her transition.
We were on a night schedule for a while, sleeping during the day.
Now one day just melts into the next and we get sleep when we can. Mother often
asks the irrelevant question, "is it 7 in the morning or 7 at night?". It does
not seem to matter anymore. I am spending almost all my time in her bedroom,
reading, doing my palates workouts, holding her hand, sleeping with her. Holding
her hand is at least as powerful as any dose of the drugs she is taking so
sometimes it just is vital to her comfort.
We have not
ventured out of her room in three days now (I think). This picture was taken
Christmas Eve when Trish the visiting nurse was our Christmas Angel. Now getting
up is a real challenge. The catheter has been put in place just at the right
time. Standing up on her own legs is becoming quite the challenge and the chasm
between her bed and the commode has widened to almost insurmountable
proportions at times.
I expect now that mother is not forced to get up as much she will
be spending more time sleeping and things will progress at a more rapid rate.
That is what mother wants most dearly.
All for now, I need to get back into her room. It often
feels like we are in a little cocoon (preparing to make a butterfly
perhaps?) where time has stopped and we are just in the blessed now, each moment
cherished for what it is; complete.
On a beam of light,
Thomas